joreth: (sex)
2020-05-10 12:54 am
Entry tags:

How Do You Ask Someone If They Have An STD On The First Date Before Getting It On?

https://www.quora.com/How-do-you-ask-someone-if-they-have-an-STD-on-the-first-date-before-getting-it-on/answer/Joreth-Innkeeper 

Q.  How do you ask someone if they have an STD on the first date before getting it on?

A.
  Me:  “I’m really attracted to you right now.”

Him:  “I’m really into you too!”

Me:  “Oh yeah?  Well, if you give me your gmail address, I’ll link you in to my Google Doc of my sexual history and all my recent STD test paperwork.  When’s the last time you were tested, and do you have the results handy?”

Honestly, this shit doesn’t have to be complicated or a big deal.  New things are always awkward, but the more you talk about sex and safer sex protocols, the easier it gets with practice.

The conversation I just had a few nights ago went like this:

Me:  “Hey, I know we’re totally incompatible for a romantic relationship, but how would you feel about just hooking up once?”

Him:  “Uh …”

Him:  “Yeah, I’d be interested in that.”

Me:  “OK, let’s make a date so we can talk about all the stuff, like testing and negotiating what kind of hookup we both want.”

Him:  …

Him:  “OK, when would you like to get together?”

Me:  “How’s next Wednesday?’

Him:  “Sure.”

[later, on Wednesday, we have The Talk]

Him:  “Y’know, most people don’t sit in a public restaurant talking about STD tests and sex boundaries.”

Me:  “That’s just weird.  How else are we supposed to decide if we’re compatible?”

Him:  “Most people just kinda go for it and see how it works.”

Me:  “That’s very inefficient and messy.’

Him:  “Well, that’s how most people do it.”

Me:  “And how has that worked out for you so far?”

Him:  …

Him:  “I see your point.”
joreth: (polyamory)
2018-09-12 01:38 pm

What Agreements Do Polyamorous People Make In Their Relationships?

http://qr.ae/TUNDQL

Thanks to some experiences with people who use "agreements" as weapons and who also hide their abusive behaviour behind social justice language, I have become extremely averse to words like "agreements" and the casual use of the term "rules".

I was always pretty anti-rule, but a lot of things are treated as rules while being called other things. And I've discovered that the words we use are important because they subtly and subconsciously influence how we think and view our partners and other people, especially when we use agency-denying language in jest or casually.

So I have written an answer to the common question "what are your relationship agreements" that I'd like to archive on my blog to share every time the question comes up:

I don’t have very many “agreements”. I learned the hard way a long time ago that some people use the word “agreement” as a blunt object with which to beat partners over the head. I don’t do “rules”, which are things that are imposed on other people that dictate their behaviour (and sometimes their emotions and choices). I do “boundaries” which are lines that I draw around myself where I don’t want other people to cross.

Some people treat “agreements” like “rules”. You can usually tell that someone is treating an agreement like a rule when you discover what happens when someone “breaks” the “agreement” or wants to change it. If there are punishments, if breaking or changing the agreement is seen as a “betrayal”, then it’s probably a rule in disguise.

What I do is, I have certain things that I *prefer* to do with my own body, and I tell my partners what those things are so that they know what to expect of me. If I change my behaviour for any reason, then I notify my partners as soon as possible that I’ve done or am planning to do something different, so that they can make informed decisions about their own body (mind, emotions, time, etc.) based on my choices.

The things that I prefer to do is to get tested once a year for HIV, gonorrhea, syphilis, & chlamydia (what I refer to as The Big Four) and also HSV +1&2. If I have not had any new partners in the last 6 months, and my ongoing, regular partners have not had any new partners, then I might skip a testing period. But if I am considering taking a new partner then I will get tested right before so that my tests are the most current possible. Then I also prefer to get tested about 2 weeks after I take on a new sexual partner.

I prefer to see the actual tests results on paper for my partners before we have genital contact or fluid transfer for the first time, and 2 weeks after any ongoing partners take on a new sexual partner. I also prefer to keep an open dialog with all potential partners and ongoing partners about our sexual history, our current STD test results, our interests in potential new partners, etc.

I tend to use condoms only for birth control, and I tend to prefer having sex with men who have had vasectomies so that I don’t have to use condoms for birth control. I don’t consider condoms alone to be sufficient protection in the absence of discussing sexual history, STI testing, and sexual patterns so I don’t generally have even barriered sex with people I’m not comfortable having unbarriered sex with.

I prefer to choose sexual partners who have similar STI risk profiles as me - people who prefer to get tested regularly, only have sex with partners who get tested regularly, who openly and frequently discuss sexual risk and history and behaviour, who tend to have a relatively stable number of partners, who have had vasectomies, and who have paper test results that they are willing to share with me.

We do not make “agreements” to do these things, these are just things that I tend to do and I prefer to date people who also tend to do these things. Should either of us make choices that differ from anything we discussed that our partners can expect from us, then we talk to each other about the different choices we have made (or want to make), and we each evaluate the new situation and make our respective choices based on the new information.

I have found this to be the most statistically likely to prevent me from unwanted consequences for sex and to also be the most respectful of everyone’s agency. This allows everyone to be in charge of themselves, to have complete autonomy over their body, mind, emotions, and choices, and to still respect the risk we might place on our partners through our decisions.



**Added**  I  received a comment on my Facebook post of this article and I like my response to it that I'm adding it here.  The comment was about a person who responds negatively to agreements being broken, not because they're "rules" but because they believe their partners should find them safe enough to come to them and renegotiate any agreements that aren't working instead of just breaking them, because their own personal integrity requires them to keep any agreements they make and so only make agreements that they can keep, and because many times people will break an agreement and then dismiss this person's upset feelings as if they are not responsible for breaking their trust.

Here is my response:

And that's exactly why I don't make agreements. I basically treat them as promises, and I don't make promises that I can't keep. For most things, since I can't tell the future, I can't guarantee that I can keep an agreement or a promise. And, yeah, when trust is broken, it's understandable that someone would be upset and want that broken trust to be acknowledged.

For most reasonable people, things like "we both agree to pay half the rent" and then a few months in, having a conversation that goes "honey, I don't think I can make my share anymore, can we change this agreement?" are conversations that are had and people don't generally flip out about one person "betraying" them if they can't make their share anymore.

Those are expectations and agreements about how two people are going to treat *each other*. You will pay for half our our shared expenses, and I will pay for half our our shared expenses, and that is how we will help each other survive.

But most of the abuse that I see comes from "agreements" between two people about what one person will do *with their own body, mind, emotions, and time*. When someone makes an "agreement" about what they will do with their own body, time, mind, and emotions, and then they change their mind about that, whether it's something talked about before or after the fact, the other person they made that agreement with takes that as a personal betrayal, even though it was the first person's sole property, so to speak, to do with what they will, "agreement" notwithstanding.

The casual way that people mix these two types of "agreements" up under the same label of "agreements" is the danger, and, in my experience, most people are not savvy enough to separate these two things out when discussing their relationship arrangements.

I make "agreements" all the time, where I "agree" to come pick someone up from work because their car is non-operable and they need a ride somewhere, or where I "agree" to call them before I show up at their house to give them some notice, or where I "agree" with them on where to go for dinner so that we find a place that we both want to go.

These are not generally the sorts of "agreements" that get people into trouble. I mean, they *can* ... lots of people do things like agree to pick someone up and then totally flake out on them and leave them hanging. But when it comes to  people asking "what kinds of agreements do you make in your relationships", this is not generally what they're asking about.

Usually, they're asking about having sex with other people, falling in love with other people, spending time with other people, and spending money on other people. These are things that are better handled by discussing *boundaries*, because these are things that only one person can *own* and stake a claim to (excepting money, in states with shared property marriage laws).

I will make agreements with someone on how I will treat *that person* and how I want that person to treat me. This is discussing our boundaries. I say what my boundaries are, they say what their boundaries are, and we agree to respect each other's boundaries. Then, if for some reason, one of us feels that we can not abide by that particular agreement anymore, we discuss it.

But I will not make agreements with someone on how I will treat *my body, time, mind, emotions, or money* with respect to other people. My time away from my partners is my own time and I will not make agreements with my partners on how I will spend that time away from them. My body is my own, and I will not make agreements with my partners on what I will & won't do with my own body, etc.

It is the lack of awareness of that division (or the deliberate blurring of that division) that I see causing problems (and becoming abusive, in many cases).

It's one thing to get angry because a partner had sex with me without telling me that they recently had unprotected sex with a new partner without trading test results - that is a violation of my ability to consent. That is a "betrayal".

It's quite another thing to get angry just because they had sex with someone else, even if it was unprotected and without trading test results, and even if it goes contrary to their preferences. That is not a violation of my ability to consent. That has nothing at all to do with me. That has to do with *their* body, and I am not entitled to control of their body. That is not a "betrayal" of me.

And I will not be punished anymore for things that I do with my body, my time, my mind, my emotions, and my money just because somebody else had an expectation of the things I would or ought to do with my stuff. They are not entitled to those things, even if they have reasonable expectations of what I would do with those things.

What I do with the things that are mine are not a "betrayal" of someone else. But as soon as you say the word "agreement", people take any deviation as one.

So I don't make "agreements". I state the kinds of things I am *likely* to do and try to only date people who are likely to do similar sorts of things.
joreth: (polyamory)
2017-09-12 01:15 pm

But How Can You Have A Polyamorous Relationship Without Safe Sex Rules?

A quick explanation of how I have boundaries regarding safer sex practices that don't turn into "rules" or those insidious type of rules that masquerade as "agreements" from a comment I made literally upon waking and not even out of bed yet:

Q. You say you don't have rules or agreements about what people can do with others, but don't your safer sex agreements cover what your partners can do with others?

A. Nope, they address safer sex boundaries *with me*.

All of my relationships are structured to support everyone in being authentic to themselves and any "agreements" are about what "you" can do to *me*, not what "you" can do with others. And even then, those "agreements" are always subject to negotiation. "That thing you said you needed me to do to you? I don't think I can live up to that, so let's talk about our options".

Boundaries are the lines I draw around *myself* and only myself. They are the edges of where I end and the world begins. They tell you how to treat me, and that's it.

Boundaries are if-then statements. Rules are you-will statements. So, my boundaries are "if you take these kinds of precautions with others, then I will have this kind of sex with you" and "if you do these things, then I will not have this kind of sex with you". I do not say "we agree that you (and I) will not do these things with others."

My partners can make whatever choices they want regarding their own bodies, minds, and feelings with regards to other people. Only when it comes to what they do with me do I get a say in it. Then I choose partners who naturally, of their own volition, *prefer* to do the kinds of things that match my boundaries. Then I never have to police anyone, and there is never any punishment nor "breaking" some agreement (which, btw, is one way you know it's a rule in disguise) because I'm not their mother to dictate and punish their behaviour when they misbehave.

My relationships are a Choose Your Own Adventure story. If we make Choice A, the story goes this way. If we make Choice B, the story goes another way. This respects everyone's autonomy and agency at the same time. They are free to make choices about themselves, I am free to make choices about myself, together our choices create our relationship structure.

joreth: (Purple Mobius)
2015-11-20 02:42 pm

What Do I Commit To In Poly Relationships If Not Sexual Fidelity? - Sexual Safety


* I am committed to protecting the safety of myself and my partners through informed consent and risk-benefit analysis of behaviour, prioritizing evidence-based reason above emotional justification.
This is deliberately vague. Most people like to put down in writing (i.e. stone) their safe-sex rules. I've written several times about my safer sex guidelines, from the classifications of sex categories based on STI risk to my preferences in when I decide to take those risks. But I have learned over the years that even prefacing all that with "guidelines" and "agreements" doesn't stop anyone from attempting to prescript behaviour, impose rules, or resist change. Sometimes shit happens. Sometimes Game Changers come along and change the game. Sometimes the risks are lower because of special circumstances. And, as I said at the beginning, this is not a contract between me and my partners. This is what I commit to myself. Which means that my agreements and arrangements may be different between myself and different partners.

I'm tired of trying to nail down every little detail for every possible hypothetical scenario. That's not realistic. This commitment is intended to cover all my partners current and future, which means it has to accommodate for different arrangements and different people. I've cut away all the extraneous details and just gotten to the point - the underlying goal for what all those rules and agreements and boundaries are supposed to be doing: I will protect my safety and my partners' safety by giving the information they need to give informed consent (thereby respecting their agency, autonomy, and personal sovereignty) based on their respective boundaries, we will use that information in an analysis designed to assess risk on a per-case basis, and I will not use sexual safety boundaries to mask emotional concerns or issues. If I am feeling concerned about a partner taking on a new partner, and my concern does not match the actual, evidence-based risk, then I intend to get to the root of the issue without using safer sex boundaries as an excuse or justification or a Motte-And-Bailey Doctrine.

I get it, really I do. I've been there myself. No one wants to look like they're cavalier about safer sex, so pulling out the "I'm worried about STIs so we need to have safe sex boundaries / rules / agreements" card is a great way to make someone toe the line. It's really easy to avoid looking deeper at an insecurity when that insecurity just gave us a perfectly reasonable distraction to focus on - sexual safety. I was once so bothered by a metamour's resistance to polyamory that I said I felt "unsafe" and instituted physical barriers and restrictions between myself and my partner. I now know that was the wrong way to handle it. I should have said that my emotional concerns are affecting my willingness to be physically intimate with him, and I shouldn't have hidden behind "safety". That would have been owning my shit. But I didn't, and I do not wish to make that mistake again. At the same time, though, I want both the freedom to pursue relationships as I see fit and to be the sort of person who feels a responsibility for how her actions affect her partners so that I will be considerate of the risks that I take with regards to how they impact others.

This commitment to myself seeks to find that balance between consideration for others and freedom for myself and honoring their freedom; between maintaining a rational, reason-based, evidence-based skeptical worldview and embracing opportunity, love, sex, relationships, being vulnerable, and other emotion-based actions that bring color and depth to life.
joreth: (Bad Computer!)
2015-08-08 01:17 am

Don't Worry Your Pretty Little Head, I'll Decide For You What's Important Here

I know this will piss some people off, but I firmly believe that everyone has a right to not have sex with anyone they don't want to have sex with, for any reason they have, or no reason at all. Even if that reason is stupid. Even if that reason hurts someone's feelings. Even if I think that reason is so full of shit that I want to physically and literally knock some sense into them. They have a right to say no and they have a right to revoke consent at any time.

What they don't have a right to do is treat that person any differently in a non-sexual context than anyone else, or harm them in any way, or participate in a system that discriminates against them or any of that other bullshit. But that's not the issue. Those are good reasons not to disclose private information to people who are not sex partners and it's a good reason not to take on certain people as sex partners (with the added bonus that you don't have to disclose to them). It is *not* a good reason to manipulate someone into becoming a sex partner who would not consent to that role had they known.

"But we can't read minds to know all the possible things that all the people in the world might possibly make them not want to have sex with me!"

Strawman argument. There are things that we know by virtue of living in our cultures what people are *likely* to object to. Just like I know what Christianity is all about, and what the experience of being a white male out in society is all about, and what mono relationships are all about - even though #NotAllWhateverMajorityDemographic, I know enough about those demographics because I'm steeped in the expression of the experience of those demographics every fucking day of my life. I know that if some guy hits on me while I'm walking down the street, there is a greater-than-average chance that he won't like me *because* of my atheism, my polyamory, my feminism, my job, my independence, and my gender identity even though I'm really not that far away from cis. Those things all go contrary to the cultural narrative, so I'm pretty sure that at least one of them will be deal-breakers for the average guy who thinks it's appropriate to hit on me while walking down the street.

But, on the very off chance that he might like me precisely because of those things, or that maybe he won't mind those things, telling him about it up front will be a bonus. It'll give him even more reason to be interested in me. But that's such a statistically unlikely event that it has never once happened to me in all my years of being hit on by randos on the street.  Excuse me, not minding the atheism thing happened exactly once, but he was not American-born and he was from a country where religion isn't a big thing, so I don't think it's really an exception to my point.

Now, disclosing all that shit to street randos is not what I'm advocating either - that's a personal call regarding safety. But by the time I've decided to accept someone as a sexual partner, and he has accepted the idea of me as a sexual partner, I know there are certain things that he is, by pure numbers, likely to have a problem with and could affect his willingness to consent.  Most of those things are actually related to the act of sex itself and are not unreasonable to want to know, even if their reaction to that information or their beliefs about that information are, in my opinion, unreasonable.

What I absolutely do not want, as a small female person, is to find out *afterwards* that he would not have given consent by *him* finding out afterwards and thinking that I betrayed him. I've actually already had that happen to me and I count myself damn lucky that all I got away with was a hurt pride and some temporary embarrassment at being shoved out the front door without all my clothes on. I know all the excuses - this was just for fun and not some long-term relationship, if that was a deal-breaker for him then it was his responsibility to ask about it, blah blah blah.

I know how mainstream guys (and a lot of poly guys) feel about the idea of putting their dick in somewhere that some other dick has already (recently) been. Telling them up front that their dick isn't the only one is the best way I've found so far of only fucking the guys who won't beat me for it later, and being open about that in general is the best way I've found to locate guys who actually think it's pretty fucking cool that they're not the only ones.

When someone finds out after they have already had sex with someone whom they wouldn't have had sex with had they known what they found out later, it doesn't matter how "wrong" they are for not wanting to have sex. It doesn't matter how unjustified they are for feeling betrayed. It doesn't matter to the people they kill, or beat, or humiliate. Being "right" doesn't save them that beating, that death, that humiliation, that heartache, or that disappointment.  Knowing that the potential partner is that sort of person is the kind of information you want *before* you fuck them and not to find it out the hard way.

It didn't feel great when I had to disclose to people who I liked that I had an STD.  It really hurt my feelings to have people I cared about be so afraid of something based on stigma, and not facts, that they were afraid to even touch me non-sexually even though it wasn't something they could catch that way and it wasn't even something that was likely to harm them.  But it would have hurt them more to have sex with me without the information necessary to give informed consent.  It was more than just physically harming them, because I disclosed my STD long after I needed to, long after it wasn't possible to pass it on, just to make sure they understood sexual safety.  Not giving them that information would have been robbing them of their agency.  It would have been manipulative, and it would have been making decisions for them - deciding what they "needed to know" on their behalf based on what *I* felt about that information.  Sure, *I* knew that the STD wasn't likely to harm them, but that wasn't my call to make.  They have the right to refuse sex with me on any grounds and to make decisions for their own participation based on their own risk analysis, not mine.

If the information that you're hiding (even passively) isn't a big deal, then it shouldn't be a big deal to disclose. This goes along with the Little White Lies defenses & [livejournal.com profile] tacit's post on truth and virtue- if someone is defending the secret that hard, then it's clearly not "no big deal". Remember, this isn't a situation where one partner is demanding to know something that isn't relevant and is attempting to violate another's privacy. This is something that could *change someone's consent* for having sex with you.

If you can't trust the person you're about to get slippery with to handle the information that you're keeping secret, then this is probably not the safest person for you to be getting slippery with either. If you fear for your safety, then don't take them as a partner. You don't *have* to disclose anything that will make you unsafe, but if you're unsafe with this partner, then choosing them as a partner was your first mistake (assuming you, yourself, weren't coerced or forced into the encounter in the first place - this whole rant is aimed at consensual sexual arrangements, not abuse victims keeping secrets from their abusers to prevent further abuse - again, go back to the truth and virtue post) and keeping the secret is the second in a list of mistakes.

This is about two things - 1) respecting your partner's agency enough to give them the information necessary for them to give consent. You can't read their minds to know that they would revoke consent if they found out that you once masturbated to a poster of the New Kids On The Block when you were a kid and they have an irrational fear of cooties from Donny or whatever the fuck one of their names was, but you can know that there are certain kinds of information that is culturally important and likely to affect someone's willingness to fuck you if they knew about it (and if you don't know that person individually well enough to know their specific deal-breakers, you at least know those culturally likely deal-breakers). Your partners are human fucking beings and deserve to be treated with no less dignity and respect than allowing them to consent to sex with you and I can't fucking believe this still has to be said;

And 2) saving yourself either the repercussions of being found out later, or of being a person who is not your best self. Sure, it's possible that person may never find out, especially if it's a one-night stand in a strange town and you didn't exchange names or phone numbers and have no overlapping social circles or interests to ever run into them again, even on the internet. It's probably even likely. But *you* know that you will have acted with the best of intentions and the highest degree of integrity. *You* will have been a person who respects your partner's agency. *You* will have been the sort of person that you ultimately hope your partners would be for you - someone who does not take it upon themselves to decide on your behalf what information is "necessary" when it's actually something that you think is not only important, but reasonable to be informed about.

This isn't about degree of severity.  I have two analogies I often bring out in this debate - murder and jawalking aren't the same thing and don't deserve the same punishment, but both are against the law.  A creek isn't the same as the ocean, but both will get you wet if you step in them.  I'm not talking about whose the baddest, most evilest, most terrible person out there and I'm not talking about stringing people up by their toenails even for minor infractions.  The guy who didn't dislose his HIV and had unprotected sex with a bunch of people, giving them HIV? Yeah, he was a monster, and I'm not putting him in the same category as someone who has a sort-of sexual partner with no arrangement of exclusivity not disclosing that person to a one-night-stand in another country on a business trip.  But both are still examples of not disclosing information that not only could affect one's willingness to consent but is *likely* to.  Both are still examples of not respecting the other person's right to not have sex, one example just has much more dire consequences than the other.

I'm far less likely to make a personal value judgement about someone who says "I've done some things where I wasn't my best self. I know my justifications for them, and I may even slip and not be my best self in the future, but I know that this thing is not living up to my highest ideals of integrity," than someone who tries to justify their actions, digging in their heels and doubling down on preventing informed consent with excuses, selfish justifications of "privacy" and "not my responsibility" and "too much trouble / effort."  Someone who says "yeah, I torrent big blockbuster movies.  I know it's wrong, but I do it," isn't getting the same kind of judgement from me as someone who says "I don't care if you're a starving artist, you OWE the world, and consequently me, the right to use your art without being compensated for it." (That's a real example, btw, not a strawman and not hyperbole).  This isn't about degree.  It's about being your best self and by doing so, treating those around you with the dignity and respect that they deserve, especially those you engage intimately with.

If I want to live in a world where I, as a woman, have the right to say "no" for any reason whatsoever and no reason at all, if I want to live in a world where my body is completely mine and I have ultimate authority over what happens to it, then I have to make that world by defending other people's right to say "no", even if I disagree with their reasons, because it's *not my place* to decide the validity of someone else's reasons for saying "no".  If integrity were easy, everyone would do it all the time.

"Ben, there's a story eating at you ... one you know you gotta tell."

"Not that simple."

"Telling the truth is never simple... or easy. Why only the best of us ever really try."
joreth: (Kitty Eyes)
2015-02-23 10:36 pm

At Long Last! An HPV Update!

There hasn't been an HPV update in a really long time, mainly because there hasn't been any HPV news in a really long time.  No real progress on the vaccine or the virus itself, either in curing or in understanding.  We already understood it pretty well and things seemed to reach a plateau.  But today, I have 2 fairly major updates!

1) There is now a vaccine that covers 9 strains of the virus!  The original, Gardasil, covered 4 strains - the two most common strains known to cause cancer (HPV 16 & 18) and the two most common strains known to cause genital warts (HPV 6, & 11), while the main competitor Ceravix covered the two cancer-causing strains.  There are dozens, perhaps hundreds of strains of HPV, but 16 & 19 were known to cause something like 70% of all the hpv-caused cancer cases and a smiliar number of genital warts, so the researchers understandably focused on those strains first.  There has been some evidence that Gardasil was 50% effective against several other strains as well, but it was approved for those 4, for which it's about 90~% effective.

Now, however, there will be a new vaccine, called Gardasil 9 that covers  HPV-31, 33, 45, 52 and 58 in addition to the original 4 strains.  That is estimated to protect against 90% of the cancer-caused-by-HPV cases in vaccine-protected women!  The test shows that there were slightly more side effects after taking the vaccine, but the side effects were completely within the range of expected side effects for any vaccine - namely that if you stick someone with a needle, they might faint or feel sore at the injection site.  Duh!

2) The CDC has compiled a report analyzing adverse reactions to the HPV vaccine.  And, guess what?  It's exactly as predicted - totally safe!  More than 23 million (MILLION!!) doses were administered in the US since it became licensed in 2006.  There were just over 12,000 adverse reactions reported in the 2 years that this study covers.  Out of those 12,000~ adverse reactions, 94% were not serious and the usual sorts of things you'd expect when you get jabbed with a needle - fainting, soreness, redness at the injection site, dizziness, etc.

Out of the 6% that were classified as "serious", 32 were deaths.  I know, 32 dead is an awful number.  But remember, that's 32 out of MILLIONS of doses.  AND, on top of that, not a single one of those deaths can be tied to the vaccine itself.  They had to do with illicit drug use, diabetes, a known heart condition that resulted in heart failure, etc.  Remember, VAERS - the Vaccine Adverse Event Reporting System - collects data about, literally ANYTHING that happens to someone after a vaccine.  I wrote about the Phase III trials in India a bunch of years ago, where 6 girls died after taking the vaccine, but that included several suicides by drowning and a fatal snake bite.  And yet, the system is designed to count anything bad that happens, so they got counted.  Even if all 32 of them could be linked to HPV due to some quirk of genetics or something, that's still only 32 out of millions, and that's still a risk worth taking.  And yes, I do take these risks myself.

After analyzing all the data, the summary concludes that there is no evidence to support the vaccine causing a single one of those serious adverse reactions.  There are, however, several cases that the study recommends further investigation, although I would like to reiterate that it recommends further investigation EVEN THOUGH there is currently no evidence to suggest those reactions were a result of the vaccine.  This is science working - if the evidence doesn't reach a certain level of confidence, they keep looking at it.  There rarely is any black & white, yes / no answers in science.  There is, however, margins of error and robust vs. weak spectrums.  And the evidence for the safety and efficacy of the HPV vaccine has pretty much slammed the needle on the "robust" side supporting the vaccine.

However, even with the safety evidence continuing to mount, the CDC and the FDA both have amended their warning recommendations to better reinforce safety protocols, such as keeping a better watch on patients for 15 minutes after receiving the vaccine to make sure that they don't fall and hit their head if they get dizzy from being stabbed with a sharp pointy object.



So, the bottom line is that the HPV vaccine is as safe as any vaccine out there - which is to say pretty damn safe; pretty much no one has been harmed by it any more than one would expect to be harmed by being poked with a big needle even with no vaccine at all; they continue to watch and evaluate and refine the process; and there will shortly be an even better vaccine available that I heartily recommend to everyone who can afford it.

For more on HPV vaccine safety, I refer you to a previous post that includes a graphic from the Information Is Beautiful site that elegantly explains, using easy-to-grasp graphics, the relative risk vs. safety and efficacy of the vaccine.  I also recommend clicking on the STI tag below to see all my older posts on the subject.
joreth: (Kitty Eyes)
2014-01-07 12:53 pm

Local STD Testing Update

I haven't done an update on local testing options in a few years, so even though that post is still here in my journal, it's time to do a new one.

Local Testing Options Review )
Here's my opinion on necessary testing )

To sum up:

Get tested for everything listed above at least once to establish a baseline. Then get tested for The Big Four approximately once a year and 3 months after new sexual partners.

If you don't have a GP or health insurance for a full STD screening, visit one of the online services like AnyLabTest Now! for a complete workup to set your baseline. Then, if you are in the Orlando area, I recommend using the Orange County Health Department on Center Ave. for the minimum Big Four to maintain your regular testing schedule and AnyLabTest Now! for the HSV test for the most economical options. If you skip any of the steps, get another full workup as soon as possible to reset your baseline known health status. If you test positive for anything, discuss your case with your STD counselor, your clinician, or your GP for the appropriate measures for you.

For more information about HPV, about HPV research, or about other testing posts that I have made, click on my STI tag below.  I focus on HPV research and occasionally I post about local testing options and general testing information to give non-local people enough information to research their own local testing options.
joreth: (Nude Drawing)
2013-09-16 12:09 am
Entry tags:

STD PSA

Did you know that STD screening only requires a blood & urine test? No invasive procedures, no penis swabbing, just a blood and urine sample. That's it! And did you know that they ONLY test for the specific STDs that you're paying them to test for? Nothing else. No "everything" test, no drug test, no genetic defect test, just the specific STD tests that you request. NOTHING else will show up on these tests.

Which means that you have to request specific STD tests. You can't just ask for "everything". They can't test for "everything". If you ask for "everything", they'll just give you those tests they think you ought to be tested for, which actually leaves out quite a few STDs because most clinics don't think you need to worry your pretty little head about silly things like STDs unless you're showing symptoms.

Also, you can get the most important tests at your local Planned Parenthood (while offices are still open, which won't be for long if the Rethuglicans have their way - PP is my primary health care provider, which means I'm screwed if I move to an area where the offices are getting shut down) or county clinic for fairly low rates. For a little more, you can get even more tests from several online services that will just send you to a local lab for your convenience.

All sexually active adults should get tested regularly, just the way we do other regular maintenance tests. If you're in a long-term monogamous relationship and you're not showing any symptoms, then your maintenance schedule will be different from someone with multiple partners, someone showing symptoms, or someone with shorter-term relationships.

My personal recommendation is to get tested prior to engaging in sexual activity with a new partner, and then again 6 months after first contact with a new partner. I also recommend actually trading test results with your prospective partners. After that, consult with your doctor about what kind of maintenance schedule is right for you. In most cases, women will only need a pap and HPV test about once every 2 or 3 years (guys can take their HPV status from their female partners) and that's it until/unless there's a change of partner or you're showing symptoms.

Speaking of HPV, ask your dentist about oral HPV screening. It's an important first defense in catching throat and mouth cancers caused by HPV.

Speaking of specific STDs, here's the bare minimum that I recommend getting tested for, all of which are available at PP, and the first four (what I call The Big Four) are usually available at your local county clinic:

~HIV
~Syphilis
~Gonorrhea
~Chlamydia
~HSV 1 & 2 (you have to specifically ask for both 1 & 2 or they won't give you 1)
~HPV for people with a cervix (no test for cismen except orally at the dentist)

If you haven't ever been tested for it, you might want to get tested for Hepatitis just to start out your record keeping with a full baseline set of records, but unless you're showing symptoms or think you've been exposed, this does not need to be done as often as the others.

I also recommend getting the Hep A&B vaccine, as well as the HPV vaccine if you can afford it. You can still get the HPV vaccine even if you're over 30, you just have to pay for it out of pocket and probably will have to go to a private physician instead of a clinic. The only reason the FDA approved it for under 30 is because it loses effectiveness if you've already been exposed, and if you're over 30, then you've probably been exposed. But that doesn't mean it's worthless.

The diseases with the highest mortality rate (i.e. likely to kill you) are also the easiest to avoid by using condoms and not sharing needles. Everything else is manageable, so don't stress out about STDs. Get tested so that you know where to start from and keep records just like your other health maintenance routines. It's nothing to freak out about, but it should still be done, just like going to the dentist or changing the oil in your car. It's better to know what your status is so that you can make appropriate decisions about your personal health practices. Routine maintenance for the responsible, sexually active adult.



To follow-up on the PSA about STI testing, here's a Sexual Health & History Disclosure form that's useful for helping you keep track of your sexual health records: http://www.theinnbetween.net/sexual_health_and_history.pdf Right-click on the link and save the file to your computer.  From there, you can fill it out and save and/or print it.

Even if you never share this with anyone and just use it to keep your own records, it's important that you know your medical history, and sexual health is just one aspect of your medical history.

This applies even to monogamous people, although if you've been monogamously married for a whole bunch of years, it's probably less important to share this with your partner, as I'm assuming you have already shared this info with them at least at some point over the years. But, as I know people who think "what happened before we met doesn't count", that's probably not a safe assumption for me to make.

It does count - get tested!
joreth: (Purple Mobius)
2013-03-01 02:08 pm

It's Almost Time!

Atlanta Poly Weekend is coming up in just a couple of weeks and I'm REALLY excited about it this year! This is APW's third year and, if the trend continues, it should be even better than last year, which was better than the first year.

For APW's first year, I gave several presentations, including why poly people should cooperate with the media and how to get into it, and a panel discussion on the intersection between polyamory and skepticism with Kelley Clark. I also debuted my Miss Poly Manners costume for the first time and held a live Miss Poly Manners Q&A.

Last year I was invited back as one of APW's keynote speakers, where I featured a talk on the intersection between poly and skepticism, and also debuted my own interpretation of the Five Love Languages for polyamorous relationships. I reprised my role as Miss Poly Manners (with an improved Victorian gown) and stretched my range of etiquette lessons to include convention etiquette, not poly-specific etiquette.

This year, Miss Poly Manners comes back once again to kick off the convention with some Con Etiquette, and to participate in APW's newest fun track! The folks in Atlanta had so much great content this year that they had to open up a fourth track of programming, not including the kids-specific track! In addition to three panels simultaneously all weekend long, covering such topics as communication tools, creating intimacy, poly case law, the results of a 15-year long study on kids of poly families, kissing classes, dealing with stress, jealousy, STIs, and special poly celebrity panels, APW will also feature a fun and games track.

Just as polyamory is not ALL about the sex, conventions are not all about the serious lectures. To lighten the mood and have some fun, this year's APW will feature some of our favorite campy game shows with a special poly twist. There will be events like Poly Family Feud and APW's Got Talent and Poly-eopardy and ... Miss Poly Manners will be the center square on our own live version of Polywood Squares! You won't want to miss it!

The highlight of every weekend is the evening entertainment and this year will have another dance with DJ Cat Ninetails. Right before the dance, by special request, I will be teaching dance lessons with Sterling! According to the expressed interests of everyone who says they want to learn how to dance but never get around to taking lessons, we've chosen a dance that will look flashy enough to show off, but can be danced to almost any popular music you might hear at a nightclub, a wedding, an office party, a convention, a party, or almost anywhere out in public. You will learn a handful of steps that can have you dancing that night, with plenty of room for growth to continue learning how to dance on your own, plus a list of resources for practice videos online and where to shop for dance shoes and clothes.

I'll be on the poly & skepticism panel again with Kelley Clark & Shaun Philly, and Sterling will be giving his ever-popular workshop on using personality types to improve poly relationships & communication. His workshop fills up to capacity every time he gives it and everyone who takes it wants to attend it again. And, as a special double-feature, I'll be giving my Five Love Languages workshop again!

For those who aren't aware, The Five Love Languages is a self-help theory developed by Dr. Gary Chapman. The basic premise is that everyone expresses their feelings of love and wants to have love expressed to them in certain ways. Those ways can be grouped into what he calls "languages", because they are ways that we all communicate our feelings of love. But the problem is that we don't express or feel loved in the same ways as everyone else. So we can love another person, and do things that we think expresses our love for them, but that person may not hear that they are loved because they speak a different love language than we do.

When people have partners who do not express love in the way they most feel loved, i.e. in their own love language, then it doesn't matter how much the other person loves them, they won't feel loved. And when people don't feel loved, they end up with what Dr. Chapman says is an empty love tank. When people's love tank is empty, they can act out in hurtful, damaging, even unpredictable ways. We have to learn how to communicate our love for each other in ways that the other person most needs to hear, because this acting out is all about how one feels regardless of how the other one thinks he or she is behaving.

Think about a child who is neglected by their parents. You will often see so-called "troubled kids" that have absent or neglectful parental figures. The movie, The Breakfast Club, is pretty much the quintessential story of kids with empty love tanks and the kinds of trouble they get into when they are crying out for love and attention. Adults aren't any different, although they may act out in different ways. Then again, sometimes they don't. People under stress and feeling neglected, unloved, and alone, often do all kinds of strange things in a reaction to that stress, and they often lack the vocabulary to express what it is they're lacking or how to give it to them. And, sometimes, their vocabulary is just fine, but the person listening doesn't have the vocabulary to understand. Or worse, when both are lacking the words to explain and the definitions to understand.

Many times, one person in a relationship will insist that they are doing everything possible to show how much they love their partner, and their partner complains that they still aren't getting what they need, still feel hurt, and still act out. If you've ever tried every way you can think of to show someone that you love them and they still accuse you of not loving them anymore, this is probably what happened - your partner had a different love language and the two of you were talking past each other, not realizing that you were actually speaking different languages. Learning to speak the other person's love language will often take care of many other problems in the relationship, sometimes things you didn't even know were related.

The Five Love Languages is one tool, among many, to give people a set of vocabularly to help explain how they need to feel loved and what they're doing when they are expressing their love. I've taken out the religious justifications and the monogamous intentions and the heteronormative assumptions and adapted the theory to apply to all genders and all relationships. You'll find out what your primary love language is and how to identify your partners' love languages, and concrete suggestions for expressing love in different languages. You'll also get a handout with summaries of each of the different languages & suggestions to take home for future reference.

So I'm really excited to get to do this workshop again, and to dance, and to see all of my old friends from previous years and to meet new friends this year. I'm terrible about out-of-context meetings, so if you see me there, please tell me how we know each other (if you follow me on a particular social networking site, if we've met before somewhere else, etc.) so I can connect the different contexts. Hope to see you there!
joreth: (Bad Computer!)
2013-02-19 10:10 pm
Entry tags:

STD Testing Tips

When calling around in your town to find an affordable clinic that offers all the STD tests that you want, you may come across some clinics with less-than-knowledgeable staff.  It is my opinion that the patients should never have better medical training in the specialty field than the clinic or office the patient would like to patronize.  Here are some tips for weeding out the questionable offices:

1) On the phone, ask what kinds of STDs they test for.  If they say "all of them", repeat the question, emphasizing the word "which".  If they still say "all of them" without giving you a specific list, don't go there.  The receptionist, at least, has no idea what her office handles and will not schedule you for the appointment you want, leaving you to make it all the way up to the doctor herself before discovering that you just wasted your time and now have an office fee or copay for no reason (or will have to have another set of fees for a second office visit somewhere else).

  1b) To really test their knowledge, ask if they have the HPV test for men.  If they say yes, be immediately suspicious and ask to speak directly to the doctor.  The doctor should know that their phone staff is providing bad information and is about to schedule you for a service that doesn't exist, which will cost you time and money.  Then, don't go there.

2) When they list the STDs they test for and leave off "HSV", ask them if they test for HSV.  Be sure to say "HSV" and not "herpes".  If the receptionist doesn't know that HSV is the virus that causes herpes and that the HSV test IS the herpes test, don't go there, for the same reason as point #1.

3) When the receptionist or scheduler does happen to understand that the HSV test is the same thing as the herpes test, ask which test they offer (hint, it should involve letters like PCR or IgG).  If they can't tell you which test, or they are unaware there are multiple tests with different methods and accuracy ratings, don't go there.  Even a receptionist who has no medical training should at least be able to ask a nurse or technician the answer to that question, or to ask her office manager what the lab order code says about which herpes test they would be ordering.

  3b) If, upon asking which test they offer, the receptionist responds with "what do you mean which one?  You either have herpes or you don't!", then don't go there.  First of all, that's not true, there is more than one strain.  Second, that wasn't the question, and even accurate test results don't give you a binary yes/no answer - it's a probability or a yes/no with an error margin for false negatives/false positives.

  3c) If, upon making it clear to the receptionist that there are several different types of HSV tests, and you want to know which one that clinic uses, she STILL doesn't know so she offers to transfer you to the lab, where the lab technician answers and is unable to tell you the name of the test they use, don't go there.  I shouldn't even have to explain why this is a problem.

  3d) If you manage to find out which type of HSV test they offer, get them to state, unambiguously, whether they will be able to distinguish between the types of HSV.  This may not be important to you, but it is important to know if this office knows the limitations of their own tests.

4) When you arrive, if you have the money for the tests you want, and the office offers the tests you want, and the doctor, nurse, or technician tries to talk you out of getting a particular test because "everyone already has it, so don't worry about it" or "if you don't have symptoms, you don't need to be tested for it", be prepared to exaggerate or outright lie about your sexual status and demand the tests that they offer that you are willing to pay for.  When I say "be prepared", this means to have the numbers and situations already in mind, and to also be ready to sit there and be lectured about safer sex practices.

Some clinics do not think that a full battery of regular STD exams should be part of one's regular medical maintenance, while simultaneously believing that multiple sex partners automatically equates one with the crack whores who fuck dozens of strangers a day in exchange for dirty needles to shoot up with.  So you may have to tell them that you have more partners than you do, or that your partners were exposed to all kinds of STDs and just deal with the judgement and the, probably, misinformation based on a skewed sense of morality that places a person's value on their sexuality, or lack thereof.  I once had to break down crying about a cheating boyfriend who tested positive for HSV in order to get an HSV test without symptoms.  I also had to break down crying in order to get the 2nd AND 3rd shot in my hepatitis vaccine schedule, which didn't make any sense at all since they gave me the first shot.

Not all of us have health insurance or the money to afford to shop around for just the right health practitioner who will treat us respectfully.  Some of us have to go for price over comfort.  But we shouldn't also have to sacrifice competence.  In fact, it might turn out to be more expensive if you try going for price alone and discover that you didn't actually get what you wanted and now have to go somewhere else anyway.

*This PSA brought to you from direct conversations I've had in the last 2 days with various clinics around town.  Yes, I actually had to explain to someone that HSV was the virus that causes herpes when I called an STD clinic.*
joreth: (Misty in Box)
2013-01-24 10:31 pm

Still No HPV Test For Men

As I mentioned in my last post, I had heard there was a clinic who was offering the HPV test for men, but I was waiting for confirmation and more information before I posted about it.  I had looked up online on my own and only found more insistence that no HPV test existed except for that used in research.  One clinic in California was taking it upon themselves to use that research testing method to conduct their own study, thereby giving men who participated an HPV test.

Well, I found out that the clinic I heard of that may have had an HPV test for men does not, in fact, have an HPV test for men.  They seemed to have deliberately misled interested patients, as one particular patient tried to confirm several times, through several levels, that he was scheduling himself for an HPV test, and at each level was either told yes, or given an ambiguous or non-committal answer until he finally saw the physician personally.  That physician was the only person to say, flat out, that there was no HPV test for men and that their answering service gives out the wrong information all the time.  The person on the phone, the receptionist, the nurse or medical technician who prepped him for the appointment - none of them corrected the patient on the belief that he would be receiving an HPV test that day.

Remember, when you go in to be tested for "everything", you are not tested for everything.

Let me repeat that:  
When you go in to be tested for "everything", you are not tested for everything.

You MUST go in with a specific list of tests that you want to purchase and get confirmation from the physician herself that you will be tested for those things.  And, more than just saying "I want a herpes test", you have to say "I want the HSV PCR test" or whatever you're looking for.  Some STDs have different kinds of tests with different levels of accuracy and expense.  Make sure you know exactly which test you want and ask for it by name.  

And then be prepared to argue with them over the necessity of getting tested.  Many clinics and doctors still take the position that certain STDs like herpes and HPV are so prevalent, that there's no point in worrying whether you have it or not if you're asymptomatic, so you don't need to get tested.  They figure that if you don't have herpes or HPV yet, you will soon, so just don't worry about it until you start showing symptoms and need treatment.  If you're OK with that, then fine, but if you want to have test results in your records to show prospective partners, then insist that doctors provide the services that they offer to the patients willing to pay for those services, and if they won't, go elsewhere.

It is true that many people either have or will have HSV or HPV, and it is also true that, for the vast majority of those people, the virus is little more than an "inconvenience".  It is also true that stress about health and medical procedures can, for some health issues, be worse than the health issue itself.  Many people are worse off for worrying about things than they are for having those things, and for a great deal of things, too-often testing does not significantly increase your odds of survival or better health.  People who go looking for health problems will often find them, even when those problems are mild or things that the body can heal on its own.  Many people put themselves through unnecessary procedures and surgeries to take care of things "just in case" that probably won't hurt them and that are so mild that they'd never know they had if they hadn't gone looking for them.

All of that is irrelevant if you have done your research and you just want to have accurate and update medical records for your prospective partners.  I caution people against using test results as a way to justify and entrench their own sex-negative fears.  Some people hold onto their "clean" records as sort of a talisman to justify rejecting and being hurtful towards prospective partners who might have an STI.  I can't tell you how often I've heard statements like "I'm clean and I want to stay that way".  The fact is you won't.  STIs should be treated as any other equivalent illness.  You will get sick, whether it's the flu, strep throat, the measles, or warts and cold sores.  By all means, take precautions, but be consistent.  If you're afraid of getting a life-threatening illness like HIV, use condoms, get your flu shots and pertussis boosters, wash your hands regularly, don't go to work sick and insist that other sick coworkers go home, and get your physicals and preventative exams done on time.  

Being sick sucks, but STIs are no better or worse than any other comparable illness, so don't use your test results as a weapon against people with STIs, or to look down on people with STIs, or to think you're "safe" from life-changing surprises like illnesses.  Get tested so that your partners can make informed decisions, so that you can see patterns in your own health history, and to help you and your physician decide on appropriate medical  procedure schedules.  If you routinely have abnormal pap smears, for example, then you ought to be getting the HPV test regularly & often, like annually or semi-annually.  If you consistently have normal pap smears, have no history of cancer in your family, and your sexual network is fairly static, then you can probably get checked less often, like every other year.  

But, yes, definitely get tested "regularly" (for whatever definition of "regularly" fits your particular health circumstances) and definitely insist that your physician provide you with the proper services.  Just make sure to use those tests in the same way that you'd use any other health test - to evaluate your personal risk assessment and manage your personal health checkup schedules, not to freak out about being "unclean" or to ward off "dirty" partners.


For a list of the STIs that you can and should be tested for, download the Sexual Health & History Disclosure form, which includes spaces for you to add your latest testing dates & a record of your past and current partners, their testing status, & the transmissive activities you shared with them and can be found here, along with some other convenient charts & graphics
http://www.theinnbetween.net/polysex.html

joreth: (Kitty Eyes)
2013-01-15 12:53 am
Entry tags:

Carageenan Update

It was back in July, 2010 that I last wrote about carrageenan, a component of algae found in nearly every type of commericial food, that looks to have HPV-blocking properties.  All in vitro testing done up until that post seemed very promising.  In July of 2010, a research facility had finally gotten the go-ahead to try a double-blind trial on actual people - testing had only been done in the lab before then.  Well, I haven't heard anything new since then so I haven't made any posts about it.  I did a cursory Google search for the specific product that I wrote about, Carraguard, to see what happened, but I didn't find anything more recent than that same study.  It has apparently concluded and found the gel to be effective, but the conclusion didn't make any headlines that I'm aware of, and no announcements about putting Carraguard into production.

Today I saw that there's another research facility in Canada doing their own double-blind, human study sing a personal lube that is currently available on the market, Divine 9 which also passed all of it's Phase II, in vitro, trials).  They will give a very similar gel/lube with either carrageenan or a placebo to be used during sex and then follow up with the women in a year to check the rates of HPV infection.  Hopefully something will actually come out of this study, so that we can start seeing products made specifically with anti-HPV properties in mind, and so we can offer a more affordable option to those women who can't afford the vaccine.  In the meantime, there are already personal lubes available on the market with high concentrations of carrageenan as a regular ingredient used to thicken products.  Divine 9, Bioglide vegan), and Oceanus Dreambrands Carrageenan are all commercially available lubes that the research suggests may be effective and preventing HPV transmission during sex.

Also, I just heard that there is a test for men now, but I'm still trying to get details on it.  So far, all I've found is this article talking about a clinic in San Diego that decided, on its own, to start swabbing the urethra opening and performing the HPV test in the context of a research study.  According to the CDC, there is still no FDA-approved test for men.  Near as I can figure, individual men can occasionally convince a doctor to do the woman's test on their penis.  But I know someone who claims to have found a doctor to give him the test, so when I get more information on it, I'll post it here.
joreth: (Nude Drawing)
2012-02-28 08:59 pm

HPV Boundaries, Fluid-Bonding, & Relationship Classifications

**EDIT**  Apparently I wasn't clear enough so it needs to be repeated.  This post is ONLY about classifications of relationship statuses and does not cover all the variables & details about who gets to go into each category.  These categories are where I START from, not the end-all, be-all of my risk assessment procedures.  I cover those topics elsewhere.**

It has come up recently in conversation several times what the definitions of things like fluid-bonding & HPV boundaries & so forth are. So I decided now was a good time to write it all out.

My approach to poly relationships is that each relationship is its own thing and I do not concern myself with the behaviour of my partners with other people unless that behaviour directly affects me (breaking dates with me to go out with someone else who doesn't like me, for instance). I see no value or benefit to being concerned with which sex acts my partners perform with anyone else on an emotional level, and I do see a lot of harm in doing so. Sex, to me, isn't special just because it's sex. Sex is special if the person I'm having it with is special. So I have no attachment to my partners performing certain things just with me, or avoiding certain acts with other people. Sex with my partner is no less special because he also has sex with his other partners, and it's no more special because he doesn't have sex with, I dunno, the checkout girl. Sex with my partners is special because anything with my partners is special, and because my partners themselves are special.

So when I make fluid-bond agreements, or when I use the term "fluid-bond", I am putting more emphasis on the "fluid" part than on the "bond" part. Remember, the only reason for me to be concerned about my partners' behaviour is when it directly affects me. Bringing home an STD directly affects me. So I have different levels of activity between myself & my various partners based on my risk assesment of my physical safety with that partner.

When I say that I have a "fluid-bond" agreement, I do not mean that my partner and I have agreed to only transfer fluids between us. My agreements are based on boundaries, not rules, and that sort of agreement is an imposition on other people's behaviour. My agreements do not tell my partners who they can or can't transfer fluid with. They lay out the circumstances under which *I* feel safe to transfer fluids with them (and vice versa). They are free to make their own decisions on what they do with whom, and I will modify my own behaviour with that partner based on those decisions. I then tend to seek out partners who have similar levels of risk to my own so that I can enjoy relationships with as few restrictions between us as possible without worry or concern (regular testing helps with that too). If they have similar levels of risk as me, then I don't need a rule telling them how to behave. If they have significantly different sexual values than me, then a rule won't stop them when they feel it is important or "right" for them to do it.

Some people put emphasis on the "bond" part, which is some kind of unique connection between them that is symbolized by the transfer of fluids. Some people are incapable of enjoying sexual activity without a deep, emotional connection to their partners, so a fluid-bond might be a statement of the level of emotional committment between the partners.

There are too many variables for me to say automatically that this is a bad thing, but it has been my observation that the people who tend to choose this method are more likely than not to do so for reasons that [livejournal.com profile] tacit highlighted in his Whats Wrong With Rules Anyway post. Saying "I am not interested in sex unless I love you, therefore being fluid-bonded says how much I love you" is one thing, but many people do not use terms like "fluid-bond" to describe what they do with each other - they use the terms to describe what they don't do with others.

But I'm explaining what I do with my partners, in terms of how I use relationship categories.

So, what is a fluid-bond, in my relationships then?

Since my reason for being concerned with relationship categories is to explain "how does this directly affect me", and in the area of sex that means STD and sexual safety, I define fluid-bonding exclusively around fluid-transfer activities that can transmit STDs. If it isn't going to transmit STDs to me, then I'm not concerned with categorizing it. Sweat and saliva do not transmit STDs. Certain viruses have been known to be found in the saliva, but those classified as STDs are either not found in the saliva, or not in high enough counts to infect someone under the circumstances of kissing. Those infectious diseases that are transmitted by kissing are either not STDs or are transmitted by contact - cell shedding - or airborne, not fluids.

HSV is transmitted by kissing. But 1) I don't consider something an STD if you can catch it from your grandma and 2) since you can also catch it from sharing drinks and other non-direct-contact ways, and it's also very rare to catch it in such a manner, I consider the attempts to completely avoid HSV to be futile* and a direct downgrade in my quality of life (i.e. the payoff is not worth the sacrifice).

So this means that, to me, a fluid-bond is willing to share any activity that transfers body fluids that can carry STDs. Blood, vaginal fluids, penile/seminal fluids, but not saliva or sweat. If a couple uses condoms and dental dams correctly & without fail every single time, a couple can have penetrative sex (PIV, anal, oral) and not be fluid-bonded. If a couple does not have Penis-In-Vagina sex ever, at all, but does engage in oral sex without barriers, this couple would be fluid-bonded, by my use of the term meaning exchanges body fluids.

Since there are so many ways to catch something that either don't involve fluids, or can be transmitted because of human error even with fluid precautions, I have a tendency to just avoid certain activities unless I'm willing to fluid-bond with that person. I'll kiss, pet, make out with, grind on, etc. with someone without too much concern, but if I'm interested in going down on them, or having intercourse, he's probably someone I am also willing to exchange fluids with. If he's so unsafe that I'm not willing to exchange fluids with him, then I'd just rather avoid those activities completely, than risk either accidental exposure or exposure to something that is contact-borne.

A lot of people are willing to have that intermediary step, where they are interested in penetrative sex of some kind, but prefer to maintain fluid barriers. That's fine. And when my partner is not sterile, I can see the need for that intermediary step in my own relationships too. But as a general guideline, in order for me to take that step closer to exposure, I want to feel confident that the risk of exposure is as minimal as possible, and if it's that minimal, then there isn't any need for the intermediary step without extenuating circumstances (i.e. contraception), for me.

So this brings us to HPV boundaries. HPV and HSV are the easist STDs to catch, and not stopped by avoiding fluid-transfers. If you avoid activities that can transmit either of those, then you will also avoid all the other STDs, and pregnancy, and a few other non-sexual illnesses. Since I've already decided that complete 100% avoidance of HSV is impossible, that leaves HPV as my Gold Standard.

Therefore, HPV boundaries are avoiding any activity that is likely to transmit the HPV virus. This means no direct oral, genital, or manual contact with the partners' genitals. Kissing does not appear to transmit HPV, but oral sex does, even with condom use. General guideline for me is if the clothes below the waist stay on, it's probably safe (allowing for exceptions, but they are exceptions to the "rule").

This allows for a lot of other sexual activities while still maintaining a reasonably safe risk level. If my partner does not have any symptoms of an oral HSV infection (and I'm fairly confident that he knows what they are & is being honest when he says he doesn't have any), then I'm pretty comfortable engaging in activities that include contact above the waist, no-contact sex (phone sex, masturbation-voyeurism, etc.) and/or some BDSM activities. I can have a long-term, emotionally intimate relationship with a partner and maintain HPV boundaries indefinitely if I think there is a good reason to do so. This means that I can actually have a sexual relationship with a partner who has HPV or HSV and not put myself or my other partners in a higher-risk situation.

If I want to explore those activities that are prohibited by my HPV boundaries, then that means that I am confident that these activities will not significantly increase my risk (in much the same way that monogamous people in long-term committed relationships are willing to forgoe condoms and other barriers). And if I deem my partner to be safe enough to not significantly increase my risk, then I'm generally willing to go straight from HPV boundaries to fluid-bonding, with only circumstantial exceptions.

Also generally speaking, one of the main things that makes me feel confident that these activities will not significantly increase my risk is testing. If my partner doesn't have an STD, then he can't give me one. Recent & regular STD tests, combined with an assessment of his behaviour, is a statistically safer way to avoid STDs even than regular condom use with a partner of unknown status. Although there is some trust involved, it is far less trust than any monogamous couple who just takes for granted that their partner is completely sexually fidelitious to them and doesn't have anything from a prior relationship. But if it is reasonable for monogamous people to "trust" their spouses and never get tested, then it shouldn't be any less reasonable for a polyamorous person to trust their partners in a relationship that is transparent, hard to hide secrets (the more people in the group, the harder to keep a secret from all of them), and where all the participants regularly get tested for STDs including prior to becoming partners.

I am far less likely to be "surprised" with an STD in my poly relationships than a monogamous person who has never been tested, whose partner has never been tested, and who does not have the safety net of several pairs of eyes checking in on the relationship participants making it more difficult to "cheat", given that anywhere from 40%-80% (depending on which study & which article you read) of people claim to have cheated on their partners at some point in their lives, that STDs can be asymptomatic and/or can lie dormant for quite some time, and that most people don't bother to get tested for STDs unless they think they already have one or have just been unwillingly exposed to one. While STD tests are not 100% accurate (nothing ever is), they're certainly much more accurate than "well, he would tell me if he had something, right? Since he hasn't, I assume he doesn't."

So, to sum up:

HPV Boundaries Maintaining HPV Boundaries means that I am restricted to activities that are not likely to transmit HPV (and by extension, any other STD except possibly oral HSV). Oral, genital, and manual contact of the genitals is off-limits. All other activities are OK.
Barriered Sex Barriered Sex means that I am restricted from fluid transfer. Condoms, dental dams, and gloves for activities that involve blood, vaginal fluids, and seminal/penile fluids. May be used for contraception rather than STD precautions.
Fluid-Bonding Fluid-Bonding means that I have no restrictions on activities for STD reasons. Willingness to exchange body fluids that can carry STDs. Condom-free intercourse & oral sex, blood play, etc.

Any of these can be modified based on individual details, such as whether a potential partner has a known infection of some kind, whether a potential partner has simliar risk aversion strategies or not, or other personal preference red flags such as a potential partner's willingness to get tested, his willingness to disclose, his understanding of STDs & sexual safety, his willingness to meet my other partners, his willingness to introduce me to his other partners and/or friends, etc. As with most of life, the actual risk calculation is quite complex and many people don't even realize all the variables that go into their risk calculation.

Lots of people also try to predetermine which activities are OK and which are off-limits, and, IMO, if you think you can just list all the activities in the world & guess your reaction to them, you are seriously underestimating the sheer breadth and depth of human sexuality. Rather, I try to come up with classes of activities, with a clear guideline for how each activity gets into that class. Then I can determine the safety of engaging in any given activity based on its class, even if I had never previously thought of that activity before, even if I can't reasonably confer with my other partners first, even if I am caught off-guard by something spontaneous. What kind of STD can the activity transmit, how does it transmit it, and is our relationship within the class that would potentially expose me to that STD?


*By "futile", I mean that it is close enough to impossible to completely avoid all possible forms of HSV transmission as to round down to "impossible". But I do NOT mean that one shouldn't minimize exposure. Taking precautions like avoiding kissing someone while they have a cold sore, using antivirals for those with active infections, etc. can be reasonable. Plenty of people will go their entire lives without ever contracting HSV. But if you think it's actually possible to completely avoid HSV entirely, you're fooling yourself. Minimize the risks, but accept the fact that you will be exposed to it one day. If you're fortunate, you might never actually succumb to it, but plan for it like you do a cold or the flu or a car accident - try to avoid it but don't think there's a 100% way to avoid it, and it's probably not the end of the world if you do get it.

joreth: (being wise)
2012-01-27 06:49 pm

Oral HPV News

http://www.latimes.com/health/la-he-oral-hpv-20120127,0,1665761.story

A couple of interesting points here, mostly good-to-know news, with a little bit of bad news.

First, oral HPV seems to be spread through oral sex, not kissing or casual contact.  That's good news and good-to-know news.

Second, 7% of teenagers already have oral HPV.  That's bad-ish news (bad because it's more than 0% but "ish" because it's "only" 7%).

Third, among those 7%, only a very small percentage of them will develop oral cancer and, according to another article recently, apparently HPV-caused oral cancers has a higher treatment success rate than cancers caused by other means (like smoking).  That's good news.

Fourth, HPV-caused cancers is on the rise with 70% of all new cases of oral cancer being caused by HPV, surpassing tobacco as the primary cause of oral cancers.  But don't freak out - 80% of the population has or has had or will have HPV at some point in their lives, and the vast majority of them will never develop any cancer.  However, this study shows that 1 in 10 boys (yes, BOYS) currently have an infection that *could* lead to cancer.  This is not a female problem, it's a people problem - get vaccinated.

Fifth, apparently, the more oral sex you've had, the greater your risk of developing throat cancer.  That's actually not new news - we already know that the more exposure you have to the virus, the greater your risk of developing cancer.  That's why they FDA won't OK the vaccine for people over 30 - the older you are, the more sex you've probably had, the more exposure you've had to the virus, the less likely the vaccine is to work because it doesn't do shit if you already have the strain it protects against.

But since no one actually knows which strains they have or have had, it's still beneficial to get the vaccine if you're over 30 and have the money for it.  If you don't have that strain, the vaccine still works.  It's just that, being over 30 means you've had more chances to have caught one of those strains, since they're the most common ones.  That's all it means by "less effective" and why it's not FDA approved.  But it's not banned either, so find a doctor to give you the vaccine off-label.  It's legal and safe, just expensive since your insurance probably won't cover it.

Doctors recommend using protection even during oral sex.  It's not "safer" than PIV sex (penis-in-vagina), you just can't get pregnant from it.  Problem is that most people don't talk about using protection for oral sex.  "It's something people are not comfortable talking about, but it is protective ... If you are going to be intimate with someone, there are some adult conversations you need to have."
joreth: (statement)
2011-12-22 09:50 pm
Entry tags:

HPV Linked To Heart Attacks & Strokes

http://www.empowher.com/heart-disease/content/hpv-implicated-heart-attacks-and-strokes-women

First of all, note that this is a preliminary study.  Much more research needs to go into this hypothesis, including replicating this study a couple more times.

Second, there is no indication at this time that HPV causes heart attacks or strokes, the way we know that certain strains cause cancer (to be pedantic, even those strains don't cause cancer each time, and, in fact, the vast majority of HPV cases never cause cancer at all.  This just means that, in those cases of cancer that are linked to HPV, as opposed to other cancers for which HPV is not linked, there is a causal relationship.)

This study suggests that HPV has some role to play in increasing the risk of a heart attack or stroke in women by a significant amount.  So it is very important that 1) everyone get the vaccine if there is any way possible to afford it, and 2) we start pushing for the DNA test before the pap smear, so that we can better evaluate every woman's personal risk factors.

At the moment, we currently have women get a pap smear every year.  Then, if there is abnormal activity, her smear sample is tested for HPV DNA.  Many in the research end of things think that this is backwards.  We should be getting regular DNA tests because those DNA tests will tell us how often we should be getting a pap smear.  If we have no HPV, we might only need the invasive pap every other year (HPV is not the only cause of cervical cancer or other pelvic problems for women, just the main cause).  

Tests have sort of a rise and then plateau, or sometimes a drop off, when it comes to efficacy.  We need to be tested often enough for things like cancer to catch them early, when we can best treat them.  But for all tests there comes a point at which testing more frequently does not have any better chance of catching the problem and all it does is put the individual through unnecessary and sometimes invasive procedures, wastes money, and wastes time and medical resources that could have been spent on others with fewer means.

Every test has a different slope and peak in that efficacy chart, and every individual will have their own gradation to that slope because of personal risk factors.  I, with my family history of no breast cancer, of no cancer ever, and with small breasts, am not considered to be high risk for breast cancer so I do not need a mammogram until I am much older, and I do not need them often - regular self breast exams and an annual check with my routine pap will do fine for quite a while.  A friend of mine with a family history of breast cancer, however, does need to be checked regularly, and has since her early 20s.

The HPV DNA test can help with this more personalized style of healthcare by identifying who is higher risk and increasing their screening schedule to a peak efficient timetable while giving those of lower risk a bit of a break in money, time, and discomfort involved with annual paps.  And, apparently, more than just how often we should get pap smears, knowing that we have active strains of HPV can also help us to adjust other exams like cardiovascular exams and better refine our risk category for heart attacks and strokes as well as cancers.

To remind everyone, the HPV vaccine is currently approved by the FDA for both men and women up to age 26.  Since HPV is also known to cause anal, penile, and several oral cancers, as well as be passed on asymptomatically from males to their partners (both male and female), I strongly encourage both boys and girls to get vaccinated.  The sooner they get vaccinated, the more effective the vaccine is, hence the age limit.

Which means that if you are over 26, you can *still* get the vaccine.  You have to request it "off-label".  This does not mean illegal or black market or anything bad.  It just means that the FDA thinks that the vaccine's efficacy (that is, how well it prevents HPV) drops too low in older people to justify making claims about it or including it on governmental or insurance programs.  

The logic goes like this:  If you have already been exposed to those strains of HPV, the vaccine won't do anything.  The older you are, the more likely it is that you have had sex, so the more likely it is that you have been exposed to HPV, rendering the vaccine ineffective.

And that is all true.  The problem is that most people do not know if they have been exposed to HPV or not, and out of those who have, many don't know which strains they have been exposed to.  The main reason is that for the vast majority of people, HPV doesn't actually do anything - we catch it and it just goes away in a couple of years.  Gardasil prevents the two most common cancer-causing strains and the two most common wart-causing strains, but it also seems to work against a handful of other strains that are closely related to the big four, just not as well as against those four.

So, since we don't know if we have been exposed or not, if you have the cash (or the insurance), get the vaccine which will significantly decrease your risk of genital, pelvic, and oral cancers as well as, apparently, lowering your risk of heart attacks and strokes.  And start pushing for screening for men as well as reversing the order of the testing - DNA test first and then the pap based on your personal risk level.  Talk to your healthcare provider, check with Planned Parenthood, and keep an eye out here for opportunities to sign petitions to politicians and/or policy makers regarding better personalized healthcare.


Notes:

http://www.medpagetoday.com/PublicHealthPolicy/FDAGeneral/30276 - FDA approves automated HPV DNA test.
http://zeenews.india.com/news/health/exclusive/hpv-vaccine-doeesn-t-push-stds-in-girls_14960.html - HPV vaccine does NOT make girls more likely to be sexually active (and girls with the vaccine are more likely to use condoms when they do have sex than girls who don't get the vaccine).
http://www.pulsetoday.co.uk/newsarticle-content/-/article_display_list/13227462/using-hpv-testing-as-primary-screening-tool-cuts-cervical-cancer-rates - HPV DNA testing is much better than pap smears & researchers recommend reversing the order to HPV test first, paps second.
joreth: (being wise)
2011-10-17 09:03 pm

HPV & HIV Basics

One of the podcasts that I only sporadically listen to is called Skeptically Speaking, and is actually a real radio show (yes, they still have those) that is recorded and uploaded to iTunes as a podcast so you can listen to it even if you are out of range. It's a good show, I just didn't discover it until I was already polysaturated, so to speak, with podcasts, so I only download those episodes that have titles I am particularly interested in.

This was one such episode. It is all about HIV and AIDS, but they start the episode out with a short bit on HPV, including a description, questions-and-answers from the audience, and a discussion of the vaccines. I highly recommend you check this out:


or http://www.skepticallyspeaking.com/podcasts/Skeptically_Speaking_122_HIV_and_AIDS.mp3

I have only a quibble about the episode concerning the HPV section. In that bit, the expert talks about the cost benefit of the vaccine. Now, I don't actually have a problem with a discussion on cost-benefits. I can separate out my emotions from my ethics from the practical considerations. I believe it is the right thing, the safe thing, and the ethical thing to encourage vaccinations in men and women. But I can also see that the cost analysis of the vaccine, from both a personal decision perspective and from a governmental budgetary standpoint, might recommend that HPV vaccination is lower on the priority list than other vaccinations, or even other programs.

No, my quibble is that I think the expert left out a major factor that could affect both an individual person's and a governmental agency's decisions regarding the cost-benefit analysis. He points out that cervical cancer is almost entirely caused by HPV, and that cervical cancer is one of the most common forms of cancer in women. Therefore, it is to the benefit of both an individual and the government agencies concerned with public health issues to ensure that women get vaccinated.

But only a very small percentage of the male population get any sort of genital cancer from HPV - namely anal cancer. According to this expert (and I didn't check his facts, so I'll take it at face value for now), pretty much the only men who get anal cancer are MSM or men who have sex with men (this includes men who are not "gay", as a self-identifier). MSM is a statistically significantly small portion of the population, and of that small portion, only a small number of THEM get anal cancer.

So, from a purely cost-benefit perspective, it may not be the most efficient use of resources to make sure all men get vaccinated, and it may not be the highest priority of men who do not fit into the high risk category to spend their money on a vaccine that probably won't help them out in any way. The reason for men to get vaccinated, according to this expert, is to protect a future female partner (which is, I think, a worthy reason, but I can see why it might take a back seat due to finances).

My quibble is that this expert did not mention anything at all about oral cancers and HPV. The latest statistics (for which I don't have time to cite at the moment) now say that HPV is the leading cause of all oral cancers (mouth, tongue, throat, etc.). Not necessarily because HPV-caused oral cancers are rising (they are, but not much), but because smoking is dropping. But what that means is that now the majority of all oral cancers can be prevented by a vaccine.

It is possible that, if you add up all the numbers of oral cancers in men and women, those cancers caused by HPV, cost of the vaccine, etc., it might still be not cost-effective to encourage mass vaccination of men. I haven't added up the numbers, so that is one possible outcome. I'm disappointed that the expert didn't mention oral cancers at all. Maybe only 1% of all men in the US ever get HPV-caused anal cancer, and we can predict 99% of that 1% based on behaviour, so maybe that isn't worth it to push for mandatory male vaccination, whereas mandatory female vaccination has a much better cost-benefit analysis. But maybe enough men get HPV-caused oral cancers that the number could actually tip the balance in favor of mass male vaccination. I would have liked for him to at least mention it.

But aside for that bit, the episode is informative and fairly easy to understand, so I recommend giving it a listen.

joreth: (Super Tech)
2011-07-22 01:19 am
Entry tags:

HPV Vaccine Safety

I may have linked or posted this infographic in the past, but it is an ongoing and updated project, so I'm posting it now even if I did post it in the past because it has probably changed.  In fact, the post that the following graphic comes from has a link to the original infographic that I probably posted when *it* came out, which compares HPV vax risk to driving risk, which is pretty cool.

It comes to us from the wonderful Information Is Beautiful website, which posts links to all its sources but makes complicated raw data easy to understand.  This particular graphic is located at http://www.informationisbeautiful.net/2011/is-the-hpv-vaccine-safe-v-2-0/.  I recommend visiting this link directly, and if you have several hours to spend, checking out some of their other infographics.



So if you are under 30 and have health insurance - go get the vaccine.  If you are over 30 and/or do not have health insurance, save up about $300 and find a provider to give you the vaccine off-label (that means it's legal to but they can't legally claim it works so insurance companies probably won't cover it - and they can't legally claim it works only because the FDA has not given them permission to make that claim yet, not because the science isn't behind it).
joreth: (Super Tech)
2011-07-09 12:00 am
Entry tags:

HSV Antivirals

I spend most of my energy on the STI tag on HPV, since that's the one I know the most about and the one that had the least amount of information when I started this tag. But I found some information on HSV that I thought I ought to share. The part between the horizontal bars below was not written by me, but I did obtain permission to post it.

First of all, some background:

HSV-1 is a strain of herpes that prefers the oral region, but it can reside in either the oral OR the genital region. It's just more commonly found orally.

HSV-2 is a strain of herpes that prefers the genital region, but it can reside in either the oral OR the genital region. It's just more commonaly found genitally.

When we say "prefers", it means that, if a virus comes in contact with the human body, there are some areas that the virus is more likely to attach itself to and some areas that it is not likely to attach itself to.  HSV does not like, for example, the backs of your knees.   You just don't get HSV on the backs of your knees, even if the backs of your knees are exposed to HSV.  So, if HSV-1 comes in contact with your mouth, you have a pretty good chance of it attaching itself there and taking root.  If HSV-1 comes in contact with your genitals, it can attach itself to you, but it can also not attach itself to you, to put it simply.  The opposite is HSV-2 - it will probably attach itself to your genital region, but there's a good chance it won't attach itself to your oral regions even if it comes in contact - although it can.

You can consider them, for all practical purposes, the same thing, just with different preferences.   Both are transmitted through "shedding", which means that they reside in tissue cells that can be transferred by contact and do not require any fluids.   So condoms are effective if the area that is shedding the virus is covered by a condom, but not if the area is outside the condom coverage or if affected cells get moved to outside the condom coverage, and condoms are pretty useless to prevent oral-to-oral transmission.

HSV is often passed from older family members to children just by giving them goodnight kisses.   As far as I'm concerned, any virus you can catch from your grandma is not an STD.   But the reason it can be passed, besides a parent just being careless, is because this virus can be passed through simple touching even when there are no symptoms.  It's called asymptomatic shedding.

Touching a person with HSV, even if you touch the affected area, does not automatically mean that you will get HSV, even if you touch them with the HSV's preferred site.  In other words, it is possible to kiss someone who has oral HSV-1 and still not get HSV yourself.   Whether you get it or not has to do with whether your partner is actively shedding at the time and how well your own body can fight it off for the amount of exposure you have.  Lack of symptoms reduces (but does not eliminate) chance of transfer, and antiviral medication that suppresses shedding also reduces significantly (but does not eliminate) chance of transfer.   Also, the strength of the viral presence in the infected partner affects how likely you are to catch it, so a partner who has an attenuated viral load is also a much lower chance of transfer.

The following is the results of some research that a layperson did into how likely it was that they would transmit HSV-1 to another partner when the site of their HSV-1 was genital and asymptomatic, meaning they had no symptoms, and whether the antiviral medication used to suppress transmission was effective for asymptomatic genital HSV-1:



You know, I really hate it when doctors just flat out lie to me. It makes me cranky.

I was able to find some of the clinical trials for antivirals used to reduce asymptomatic shedding.  The doctor had suggested the studies
were "weak" because there's no way to tell if the antiviral is working. But he was totally full of shit! They can totally tell by doing PCR!

So, back in 1994, they did PCR tests of pregnant women who had HSV-2 but were asymptomatic, and found that they were shedding the virus between 1% to > 75% of the time.  In other words the researchers could detect HSV DNA in "genital secretions".  That's not to say that the virus would be easily transmissible at this time, but it was present.

Administration of Acyclovir reduced this shedding by a median of 80% as detectable by daily PCR tests.  Not bad!

Now keep in mind, this is HSV-2, so you might wonder, as I did, if there are any studies on HSV-1.  There are!  There was a study for
Famiclovir, which is in the same family as Acyclovir, and as far as I can tell, behaves the same way (they have done studies comparing the two and found no difference). This study is from 2007.

So, there are several interesting bits of information.  First of all, the likelihood of asymptomatic genital shedding is much less in HSV-1 vs. HSV-2 given a history of genital symptoms (something the doctor told me which was actually true!).  Again, this was tested by PCR.  This confirms the common wisdom that HSV-2 "prefers" the genital site.

As in the 1994 study, they showed that the antiviral reduced the incident of asymptomatic shedding in HSV-2, and they also showed
results specifically for genital shedding in patients with a history of genital outbreaks of HSV-1:

"and genital HSV-1 shedding also decreased, from 2.0% of days for participants on placebo to no days for those on famciclovir"

So that's 2% to 0%.  Not bad! And note that 2% is very low to begin with.  (2% chance of asymptomatic shedding x low chance of transmission with asymptomatic shedding)

As far as oral shedding goes:

"Oral shedding caused by HSV-1 in participants with a clinical history of genital herpes decreased from 4.5% for those on placebo to 1.1% for those on famciclovir, whereas oral shedding decreased slightly in participants without a history, from 3.9% for those on placebo to 3.5% for those on famciclovir"
 
So if you buy those statistics, that means that the least safe thing a person with genital HSV-1 can do with an HSV- partner is kiss. Though, we're still talking about small percentages (less than 4%).

Obviously, everyone is different and I'm not sure how big their sample set was, so you can't really take these statistics as law, but they are encouraging - both in the base incidence of asymptomatic shedding for a history of genital symptoms for HSV-1, and in the reduction of asymptomatic shedding with an antiviral.

Here's the 1994 study
http://www.ncbi.nlm.nih.gov/pubmed?term=Frequent%20genital%20herpes%20simplex%20virus%202%20shedding%20in%20immunocompetent%20women.%20Effect%20of%20acyclovir%20treatment

2007 study http://depts.washington.edu/herpes/php_uploads/publications/Famciclovir%20Reduces%20Viral%20Mucosal%20Shedding%20in%20HSV-Seropositive%20Persons.pdf



So, this is obviously not an all-comprehensive summary of HSV. But it is important to note that HSV-1 can be found genitally, and HSV-2 can be found orally, although neither really likes those sites.  It is also important to note that both types can be transmitted even when there are no symptoms, and that certain types of antivirals do reduce certain transmission rates by a significant margin.

Also, DON'T PANIC. HSV, while a virus and something that no one wants to catch, is not the end of the world.  The viruses most likely to kill you are also the ones most easy to avoid, through testing and avoiding fluid transfers.  This doesn't mean that HSV is totally harmless so everyone go out and forget about safety, it just means to keep this in perspective - it's a virus like any other virus, and a lot less harmful than some other viruses.  Treat it with the caution that is proportional to the effects of the virus, not with the panic that comes from a social stigma.
 
If you have a partner with HSV or are interested in someone with HSV, you do not have to run away screaming.  If you have HSV yourself, you don't have to be afraid that no one will ever want to touch you again, or refrain from all contact out of fear of giving your partner the virus.  There are some circumstances which are low risk all on their own without requiring any assistance, there are things that can be done to reduce the risk, and can reduce it by A LOT, and, unless you're severely immunocompromised, even catching HSV can be manageable and something you can live with.  In many cases, the misunderstanding and reaction to HSV is a worse inconvenience on a person's life than the virus itself.
joreth: (being wise)
2011-06-11 01:07 am
Entry tags:

HPV & Anal Cancer

I still have no time - unusually busy beginning of summer, but I have a few posts written up from a while ago that I haven't posted yet, so I may post those in the upcoming weeks until I get more free time.

Until then, here's an article reminding us all that HPV causes more than just cervical cancer.  The article focuses on women, and reminds us to insist on full healthcare treatment if we do show a positive HPV test.  Don't stop at the cervix, HPV can, and does, show up in oral tissue and anal tissue.  
 
 
Now also remember, cervical cancer is serious, and HPV is more dangerous than we ever knew ... however, only a small percentage of people who get HPV ever develop cancer, thanks to regular pap smears and HPV DNA testing.  Now, if we can just increase the testing rate of oral and anal tissue, we can get those cancer rates down to a manageable level too, because HPV-caused cancer actually has a very high remission rate, compared to non-HPV-caused cancers.
joreth: (statement)
2011-05-05 04:11 pm
Entry tags:

Finally, An HPV Update!

http://www.figo.org/news/hiv-drug-could-avert-cervical-cancer-003611

We haven't heard much new about HPV over the last several months. Mostly, it's been minor news about specifically which category of person the FDA has approved to take the various HPV vaccines (girls and boys under 30, but not over 30) or new home test kits that haven't yet made it to market.

Reminder: the vaccine being "approved" for a certain category doesn't mean those not in that category CAN'T take it, it means that the company can't make any claims of successful treatment for those categories, and, consequently, many insurance plans won't cover it for those category.   The current evidence suggests that efficacy is decreased with age (because of likely previous exposure), but not eliminated.  So if you have the cash but are not in the "approved" category, I still recommend you find a doctor to give it to you "off-label" (which is completely legal).

Anyway, while testing an anti-HIV drug, researchers discovered that a drug called Lopinavir actually kills HPV-infected, pre-cancerous cells while leaving uninfected adjoining cells alone.

This could be extremely exciting news if it follows through on its promises and scales up to humans. So far, this drug works in petri dishes on actual human HPV-infected cells that have not yet turned cancerous but are the closest thing to pre-cancerous. In order to work on HPV, the cells require 15 times more drug than the HIV-infected cells, so this will not be available in pill form, but researchers speculate that a topical cream could deliver the appropriate dose.

At the moment, the US has a backwards system, in part because of the awesome work that was done in the past with making female reproductive health care such a priority. Currently, women get a pap smear done, which is collecting cells directly from the cervix and then looking at them under a microscope to see if there are any abnormal ones. Then, if there are, several tests are done to figure out why they are abnormal and if that abnormality is bad, including an HPV DNA test. The research community believe this is the wrong order, but the medical practice community is slow to change (partly because of financial concerns) with the newly available HPV tests.

The research community thinks that we should be having the HPV DNA test done first, to see who is even at risk for cervical cancer, and then when we have determined who actually has HPV, those women would go on a frequent pap smear schedule to watch for changes in the cervix, so they can be treated immediately, while those without HPV can go on a longer pap smear schedule (like HPV-infected women get paps every year or 6 months and women without HPV get them every 2 or 3 years, for example).

Then, with this new drug, should it pan out, instead of bothering with frequent pap smears, women who test positive for HPV DNA could just get the cream, kill all the affected cells, do another DNA test to make sure it's gone, then go back to the more infrequent schedule.

Paps would still be important, however, because HPV is responsible for something like 70% of all cervical cancers and is now the leading cause of oral cancers (thanks to smoking dropping in popularity), but that still leaves 30% of cancers that are not caused by HPV (I may have my percentages wrong, but the point is the same - some cancers are not caused by HPV).  And it is our collective access to pap smears & LEEP procedures that make the mortality rate of cervical cancer so very low in this country (no thanks to the GOP defunding Planned Parenthood).  
 
Also, do remember that even though HPV is responsible for such a high percentage of cancers, the percentage of people with HPV who *get* those cancers is very low.  In other words, 80% of women will contract HPV in their lifetimes.  But only a sliver of them will actually get cancer from it.  The vast majority of women simply pass the virus through their system with little to no effect.  It is for that sliver of women that these journal posts, and the research and the vaccines and the procedures, are so important.  Being one of those women certainly doesn't make one feel good to know that they're statistically in the minority, but let's also remember that this is important to be concerned about, not to panic about.  Regular checkups go a long way towards reducing and minimizing the likelihood of serious complications, but too-often checkups do not increase your chances and can actually have detrimental effects.  Current recommendations are pap smears & breast exams once every 2 years if you are not in a high-risk category.  I recommend annually if you have multiple partners regardless of your risk status.  More frequently is not necessary unless your physician has recommended it based on your personal risk level or if you have a known exposure to an aggressive strain of HPV.

The articles I have read so far have not been very clear on the specific mechanism involved, only to say that the drug "re-activat[es] known antiviral defence systems" that HPV switch off. So this drug could, potentially, eliminate or reduce all viral infections, but not necessarily be that magical "cure for cancer" that everyone is hoping for.